Archive for the ‘Spinal Muscular Atrophy’ Category

Charity Requests Your Vote on Facebook

January 19th, 2010 Comments off

A few months back I wrote about the charitable work many domain name companies and individual domain investors are involved in supporting.   Now I’m going to ask YOU to consider stepping up to the plate and help a charity.  The beauty of it . . . it costs you NOTHING except a few minutes of your time.  You can support them today by simply going to Facebook and voting. That’s it. Simple !

VOTE NOW -  Chase Bank is giving $1 million to the charity with the most votes and $100,000 each to the charities that come in #2-6 in votes. Currently The Gwendolyn Strong Foundation is in 7th place.  They need your help.    All you have to do is go to and vote for this charity.

What’s this charity about ?
The Gwendolyn Strong Foundation . . . The foundation was created by Bill and Victoria Strong to help provide resources and support for research organizations and the scientific community to help end Spinal Muscular Atrophy (SMA) , support efforts to raise awareness and educate the community about SMA and to support the programs focused on helping families impacted by SMA.

What is Spinal Muscular Atrophy?
It is a degenerative neuro-muscular disease. It’s also the #1 genetic killer of small children and the #1 killer of infants.   1 in 40 people carry this gene.

There is currently no treatment and no cure, but the National Institutes of Health (NIH) selected SMA as the disease closest to treatment of more than 600 neurological disorders.

YES ! Closest to treatment. According to reasearchers, the treatment of this disease could lead to further scientific breakthroughs.  “We know that Parkinson’s disease, Alzheimer’s disease, cystic fibrosis, multiple sclerosis and cancer all come from genes that are aberrantly spliced,” he said. “If this is a model disease, meaning we succeed in treating Spinal Muscular Atrophy, we will know how to correct splicing of other genes in other diseases,” according to Professor Ravindra Singh.

$1 million can go a long way to helping get closer to finding a treatment  !

Other ways you can help today :

* Tweet about it (check out mine here and here).  Ask your followers to please vote.
* Update your facebook status.  This is a great way to get more votes from your friends and family.
* Blog about it. There’s more than enough blogs in the domain space to get a thousand votes easily.
* Link to this article, the Gwendolyn Strong Foundation, or
* Banner ads. . . .we’ll have some up soon.  Snag the banners and link to

$1m can go a long way in helping this effort.  Please consider helping this charity !

Vote now !  Voting ends on Friday, January 22nd.

(c) 2009


European Domain Registration

Passing On Some Inspiring Stories of Good In The Domain Business

September 28th, 2009 Comments off

While I know that the desire of those who give of their “time, talent and treasure” is not to seek recognition, I’ve decided to point out several stories from people that I’ve met in the domain business that are giving back in ways that I find inspiring. Over the last few months, some of their stories have inspired me to think differently and look at the world in a different light. Some of them are donating money to charity, some of them are putting in time and serving and some are donating their talent to do good. I thought I’d share these short glimpses of what others are up to as a way to pass along the inspiration I felt from their efforts, in hopes of inspiring more stories.

I’m sure I’ll forget a few, but several stories that come to mind from the past include Donna Mahony and Bido’s benefit auction for the burro rescue, Michael Mann’s efforts with,  Eytan Elbaz’s whose PSA “Dear Parents” donated $25,000 to the Museum of Tolerance, Domainer Mardi Gras auction benefiting New Orleans Habitat for Humanity and’s head shaving fun (several times) to benefit cancer research. Domain registrar behemoth even touted charitable donation of a bunch of money toward several charities last year.

Recently, Ron Jackson pointed out a story of a group of domain investors and domain business leaders who are travelling to Kenya to learn of the efforts of the Water School.  The Water School a charity that is aiding in efforts to bring clean water to Africa.

Continued after the jump.

Through the charity’s Ray of Hope program The Water School empower schools and other existing community groups like hospitals to teach solar disinfection of water. Students and families are provided with education and materials to meet their own water needs.  According to the group’s website “One $50 Ray of Hope will provide a family of six with safe, clean drinking water for years to come.”

The group includes Richard Lau, Ammar Kubba, Susan Prosser, Gregg McNair and others.   We hope to hear more stories from our colleagues as they return from their trip to Kenya around September 29th.

To learn more about The Water School please visit

And just as one group wraps up their trip to Africa, tomorrow another colleague in the domain space, Jen Sale from Dark Blue Sea is heading off to Sudan with Door of Hope Australia (DOHA) to film a documentary. DOHA is a child-focused, non-government organization established to help alleviate the suffering caused by poverty in developing nations.  The film that Sale and her colleagues are filming will cover “the history and reasons behind the civil war, the 21 1/2 year struggle, the Comprehensive Peace Agreement, the upcoming election and referendum, the tragic death of Dr John Garang, and the struggle to bring about development in the devastated Southern Sudan. The film will feature firsthand stories by those who dedicated and sacrificed so much to ensure equality could come to the marginalized people of Sudan.”

Sale has a blog at where she has already begun blogging about the trip . She plans to continue updating with video posts throughout the trip.

Learn more about Door of Hope Australia at

Last year I learned of a story of a little girl named Gwendolyn Strong. I don’t know Gwendolyn and although we share the same last name, we aren’t related. However, we do have a connection through her father, Bill Strong, who I met through the domain channel.  I first read about Gwendolyn on a blog started by her parents. Gwendolyn has Spinal Muscular Atrophy (SMA), the leading genetic killer of children under 2 years of age. (You may have seen banners on DNN linking to the End SMA petition.) Her parents, Bill and Victoria, have created the Gwendolyn Strong Foundation to raise awareness, fund research and support those affected by this disease.

Learn more about the Gwendolyn Strong Foundation at
and read more about Bill, Victoria’s and Gwendolyn at their blog at

Most in the domain business should feel truly blessed. While it likely took hard work for many of us to get where we are in life, I’d venture to guess many of the “struggles” we face pale in comparison to what the rest of the world faces every day. It doesn’t take much effort to look around, outside of your bubble, and realize that life could be much different. I know it’s a bit cliche, and I don’t mean to be preachy here, but I hope by passing on some of these stories that you might take a minute to read what others are involved in, even the small things, and that you might appreciate the things you have and strive to help others in any way that you possibly can.

(c) 2009

WE BUY DOMAINS. We are interested in acquiring your premium domains – find out more.